Anyone used Lupron? Spec. for endo, but wiki says it’s also used by transwomen, and I’d be interested in that experience as well. Physical, emotional, effects on general wellness. Cutting off hormones like that seems pretty.. drastic.
Demystifying the menstrual cycle one infographic at a time.
Laparosopy Dos and Don’ts
36 hours since laparosopy. Pain is dissipating, swelling and heat going down. I can walk around at almost normal speed again, albeit at a 70 degree angle.
Pro tips:
- Eat a liquidish diet for the first 2 days. It hurts to bear down to eliminate waste. Probably made more difficult if using painkillers, which tend to constipate. Drink lots of water. Peeing more often is an annoyance, but it’ll get the muscles working again sooner.
- (1b) Possibly invest in some sort of laxative for this reason.
- Don’t eat things things that will give you gas. Seriously. I’m a moron and I ate chili, and inflated to 8 months pregnant because I couldn’t pass gas. Very freakin painful.
- Don’t plan on wearing pants. Get a sarong, or better yet, just a pull-over dress.
- Get a decongestant like halls. I couldn’t cough to clear out my throat, and kept like, drowning in my own phlegm. Which isn’t something I normally deal with, ever.
- If you have a bedframe, try tying a scarf or a belt to the footboard, because it’s pretty hard to get into a sitting position, and you can pull yourself up with it. Handy. Possibly build a pile of pillows behind you and just sleep in a sitting position.
- Get pads, not tampons. Too sore for tampons.
- (7b) You won’t really fit into your underwear, and you definitely don’t want to wear tight ones…so.. I just slept/sat on a towel.
20 hours post laparosopy
I look like a pregnant 10 year old. My belly is all swollen out..
I lost a lot of weight after I went gluten free, because I ended up taking out everything that was refined/processed/not fruit (honestly because i cannot bear the effort and risk of checking changing ingredients lists on packaged foods. And stuff that isn’t fresh produce is mostly bad for you anyway). I wear a size 6. Luckily my closet is still mostly made of old clothes that don’t fit me. Yesterday I wore an old size 12 to go to the store. Today I’m wearing a pashmina instead of bottoms, because I could no longer closer the zipper on the size 12 pants. I look like I’m 5 months pregnant, and the curve of my hip-waist ratio has disappeared because of swelling. So I look pre-pubescent and pregnant.
Protip: if you’re having a laparoscopy, plan for wearing sundresses. You definitely don’t want to touch your waist, not even with something loose and soft.
Rates of food allergies are higher in countries that are nearer the North Pole, which may be due to a reduced exposure to sunlight.
Laparoscopy complete
surgery was.. i still have both ovaries. my fallopian tubes were twisted up and glued down. they took out “an assload” of cysts off my ovaries and nearby. and there were endo patches “pretty much everywhere”.
it’s hard to walk.
he wants me to go back and get this prescription that’s supposed to stop/slow regrowth. i’m only getting this information second hand via my mother, so, she said that it’s not a hormone and not a kind of birth control, and will cost $1300/month, so I have to get health insurance.
i’ve never heard of such a drug, and i don’t have it’s name, but i thought to options where between surgery and hormones.. pentoxifylline? idk, i’ll find out tomorrow.
laparoscopy on monday. i feel sick.
Things NOT To Say To A Person With A Mental...
Things NOT To Say To A Person With A Mental Illness
- Snap out of it.
- What do you have to be depressed about?
- I know exactly how you feel.
- You’re just going to have to try harder.
- I hope you’re not doing this for attention.
- Have you tried praying about it?
- You’re so melodramatic.
- You just have to get over it and move on.
- Oh, yeah, I have depression, too. But I don’t see a therapist or take meds. I’m strong enough to deal with it on my own.
- Don’t you think it’s time to stop being sad and just cheer up?
- There’s nothing wrong with you. You need to learn how to smile and be happy.
All of these things have been said to me; the last one was what the doctor doing my intake interview at a crisis stabilization unit told me when I described my suicide attempt.
Anyone want to add on to this list?
What sucks is that it’s not even always what the other party is explicitly stating. Sometimes it’s just microagressions. Or it’s like they have said some of these sorts of things in the past, and so I have gradually learned to intuit these sorts of derogatory perspectives from their facial expressions, demeanor, and/or irritated silences.
People who deal with mental illness (or even just a significant degree of cognitive impairment) frequently deal with invalidation, emotional abuse (including shaming, covert microagressions, condescensing language), and unrequested advice. They receive a lot of innane but supposedly helpful advice from people who are not mentally ill themselves but who have a tremendous amount of confidence in their ability to diagnosis other people, un-diagnose other people, and/or resolve other people’s problems by means of antipathy-laden facial expressions or disparaging/abusive remarks.
General things to avoid doing: (1) Invalidating people’s experience, (2) emotionally abusing people, (3) giving out un-requested tips on how to overcome one’s mental illness, (4) repetitively pestering someone verbally in an attempt to motivate them to spontaneously heal themselves of their mental health problems and/or their cognitive impairments.
Question: “Why should I avoid doing those things? I just want to help!”
Answer: “Um… because you don’t know what the fuck you’re talking about?”
Regarding mental health professionals:
In a perfect world, mental health professionals would always be right. They would never make diagnostic or treatment mistakes. Their professional instincts would be spot on every time. Sadly, we don’t live in that world. In the real world, many properly credentialed “mental health professionals” aren’t actually competent to handle certain types of issues and/or certain types of intersectionalities. Sometimes professionals have deep-seated biases, bigotries, prejudices, -isms, flawed worldviews, or out-dated knowledge bases. Sometimes professionals are basically competent, yet they still make mistakes periodically. Professional mistakes become more likely during a crisis or a perceived emergency. However, generally speaking, a legitimately competent and non-coercive mental health professional can help a person to resolve (or at least better manage) their mental health issues in time.
Regarding well-meaning laypeople:
Laypeople who mean well can’t really do much of anything. However, some things that tend to be good include: Listening, demonstrating authentic love, providing validation, and in some cases discussing professional counselling options in a non-threatening and non-coercive type of manner. When it comes to pestering the mentally ill person with advice, don’t do it, and don’t give out advice that is stupid; educate yourself like woah, then maybe your advice won’t come across as so self-evidently worthless. Rule of thumb: Don’t just sputter advice or disparaging remarks at mentally ill person in your life. Ponder the possibility that your super-awesome advice is actually horrible and that your low opinion of the mentally ill person is kind of your own problem.
Fuck, the people around me say this shit constantly
fucking relevant as hell
Because normal sensory processing disorder wasn’t enough..
Patulous Eustachian tube, is a rare physical disorder where the Eustachian tube, which is normally closed, instead stays intermittently open. When this occurs, the patient experiences autophony, the hearing of self-generated sounds (breathing, voice, and heartbeat) vibrate directly onto the ear drum and can create a “bucket on the head” effect.
- muffled hearing and autophony
- Some patients with this condition are disturbed by the perceived volume of their voice, causing them to speak very quietly
Treatment
Historically, to temporarily alleviate symptoms, patients have tried positional maneuvers, such as tilting their head to one side or upside down, lie down on their backs, or sit in a chair with their head between their knees. Similarly, a routine of lying down four times per day with legs elevated to around 20 inches for at least two weeks has been attempted as well SOME BULLSHIT
Depending on the underlying cause of the disorder, the individual may need to remove caffeine from their diet, reduce exercise, or gain weight.
Estrogen (Premarin) nasal drops or saturated potassium iodide have been used to induce edema of the eustachian tube opening. Nasal medications containing diluted hydrochloric acid, chlorobutanol, and benzyl alcohol have been reported to be effective in some patients, with few side effects. Food and Drug Administration approval is still pending, however.[4]
In extreme cases surgical intervention may attempt to “bulk up” the Eustachian tube tissues with fat, gel foam, or cartilage or scar it closed with cautery. These methods are not always successful.
More recently, Canadian doctors have found that applying a pea-sized dollop of Blu-Tack to the eardrum reduces vibrations and may provide relief. Trials are said to be starting soon and the procedure itself can be performed in under a minute without anesthesia by an ear nose and throat doctor. The Blu-Tack has to be replaced at regular intervals.[5]
